Sunday, September 7, 2008

This week...

Hi all! 

Katelyn played in a volleyball tournament this weekend and played great! I am so proud of her making the 8th grade team for her school.  The 8th grade team (22 girls) is about half of the size of the 7th grade team.  Here is a picture with most of the team in it.  She is #9 on the bottom row right in the middle.  




Health wise, I have a lot going on in the coming weeks.  We are in the midst of preparing the logistics of going into Dallas for 10 days.  I start whole-brain radiation treatment Monday. I will have 10 treatments (Monday-Friday; Monday-Friday).  Last Friday, I had my mold made of my face to keep my head in the same position and to line up properly with the machines.  My biggest worry is lying down, as my lower back is what is causing me the most pain right now.  Side effects are hair loss :( and fatigue and nausea.  However, my side effects from the brain tumors should lessen: headaches, numbness, neck pain, and nausea.    

On the plan now, also, is the implanting of a pain pump this Thursday.  I will have the procedure late in the afternoon and will have to stay just overnight in the ICU to make sure all is working properly as it involves the tube going into my spine.  If there are no surprises, I will return home Friday afternoon.  I still have some questions about the pump, but what I know is that it will be filled every few months in the office, and I will not have direct control over it, as it will just pump at a continuous rate.  I am hopeful this will extremely help this back pain.   

Until Thursday, I have been given a prescription for pain relief that is (supposedly) instant relief.  It actually looks like a lollipop and I am to hold it on my checks until it dissolves!  This medicine is to hold me over until my pain pump can be implanted.  I feel like such a baby, but I instantly cry when I am flat on my back, and when I sit up, I am instantly fine.  Either way, I am glad I only have to stay on the table for a few minutes.  I use my old Lamaze breathing techniques and pray a lot.  I would covet your prayers tomorrow at 2:15.  I am not sure of my times for radiation the rest of the week, but I will definitely let you know!! 

I have been blessed by all of you in so many ways.
Much love,
Jess



12 comments:

Lynne said...

Jess -- it was great to read your post. We are so glad the Doctors have a pain management plan going for you. We will have you in our prayers tomorrow and always.
Thanks for the photos and keeping us all posted. You and Jake are amazing

Love, Lynne and Dave

Anonymous said...

Thank you for your updates. I love knowing specific ways to pray. My family is praying for you and your family.

Love,
Julie Medley

Anonymous said...

Jess, Thank you for updating all of us. I pray and think of you and your family. You and Jake are always so brave and faithful to us all. I pray for pain relief and good results for the treatment in the next two weeks. Remember: "I can do all things thru God who strenghthens me". Hang in there Jess. We are all behind you.

Ronda Cooper said...

Hi Kaylors. We are members of GCC (I play the piano) and have just become aware of your situation. I read your blogs for over an hour yesterday and was very moved. My husband, Kent, had non-Hodgkins lymphoma in 2000 and has been cancer free now for 8 years, but the chemotherapy treatments left him with constant pain in his abdomen. In 2003 he got a pain pump like the one you described and it has made all the difference in his (our) life and being able to work and perform normal daily activities. It is an amazing device and changed his life. We would be glad to talk to you about it if you have any questions. My e-mail address is rlberry1958@yahoo.com or our phone number is 972-647-8617. We are glad to have specific things to pray for you now and will be on our knees before the Father with those requests. You sound like a very strong and courageous family and we are blessed by your testimony and look forward to keeping up with your progress.

Because of Him who is able to deliver,
Kent and Ronda Cooper

Alpha 1 Vann Clan said...

Jess,
I will be praying for you at 2:15 tomorrow and will continue to pray for you for the next two weeks. I will pray for peace for you and that you will not have pain in your back. You are a blessing to me. Love you!
Kim

liz@colligan.com said...

Oh Jess, Sorry to hear of the recent developments, Bad cancer, very bad. You leave Jessica alone,
Be certain that we will be praying more focused prayers in the morning here in the northwest. Sending hugs from way up here, you are our heroes. Liz and Mark in Portland

Anonymous said...

It is 12:13 pm PST and I am praying for you.

Love,

Anita

Anonymous said...

Jess, I am praying for you. Love, Jeanette

Mike Or Cherie Stephenson said...

Lifting you up to the Father right now as you are going through your treatment. You are so loved by so many. Love you! Cherie Stephenson

Tawnya Beard said...

Jessica,
You are in our prayers!

Tessa said...

Our Lifegroup prayed specifically for you last night while all our friends were sitting in your yard praying as well. We love you!

Patrick said...

Great, informative post. Your readers might be interested to know that numerous studies have indicated that pain pumps, which are often inserted into arteries after surgery, can cause severe damage to cartilage, especially in the shoulder. This can cause a condition known as Postarthroscopic Glenohumeral Chrondrolysis (PAGCL), which causes severe pain and requires significant medication. If you believe you have suffered as a result of a pain pump, such as On-Q and Marcaine pumps, or you may be entitled to compensation for your injury. Learn more and obtain a free case evaluation from the renowned law firm of Parsons Behle & Latimer at www.shoulderpainpumplitigation.com.