Monday, October 13, 2008

No chemo

Dr. Haley was able to look at Jessa's CT scan today. Realizing how fragile Jess is right now, she said that chemo is not an option and she recommended hospice. Jessa's pain has been more reasonable at about a four or five. I need to pay more attention because although she is no longer on the pain pump (the PCA/ external one not the one inside), she is getting Delatid (sp?) in her IV as needed. Finally, her infected port needs to respond to antibiotics or needs to come out which of course would delay her coming home.


Anonymous said...

Thank you Jake for the update. I am so glad I was able to spend time with Jess this weekend - words can't express it. Jess, I felt such a peace over you Sunday evening. I know the pain will be under control soon.

I, as well as everyone who knows you, don't stop thinking and praying for you, and the right steps to follow - but we know what those are.


Anonymous said...

Psalm 63:1-4
O God, you are my God, earnestly I seek you; my soul thirsts for you, my body longs for you, in a dry and weary land where there is no water. I have seen you in the sanctuary and beheld your power and your glory. Because your love is better than life, my lips will glorify you. I will praise you as long as I live, and in your name I will lift up my hands.

Love you, Jaynie

Anonymous said...

Thinking of you both and praying for you throughout my day. I am so thankful to get to learn so much from both of you through your words and testimony.

In prayer,
Wendy Casas

Anonymous said...

I have known of Jessica for a long time...even before she was Jessica Kaylor. I knew her when she was Jessica Moody way back at Ditto Elementary and even then I knew she was a special person. I knew she was Sandy McNutt's niece and that alone was enough to make her stand out in my eyes. My mother worked with my mother at J&J and I have followed her from a distance for many many years.

But it wasn't until 2005 that I met her again as an adult. Our paths crossed again on a day that still stands out in my mind. We both lived on Caliente, just 4 doors down in fact...and Jessica comes walking by the front of my house pulling a big red wagon with two beautiful girls in it. I noticed right away that she didn't have any hair and of course, I was curious. Though I didn't know all the details then, I knew for sure something was radiating from her in a unusual sort of way. There was something angelic about her, a softness in her voice, a soothing tone...

She was obviously sick, but that didn't stop her from stopping to greet me and Payton with a huge smile on her face as we were playing that morning in the grass.

I remember asking if the girls were twins...and she said no and introduced both of them and their ages. I was so excited to find out that Jadyn and my Payton would be in kindergarten together.

I will never forget that day...I know that God has specifically placed Jessica in my life, and He made sure that we were in the front yard that day as she passed by the house.

33 years ago, God breathed in Jessica a song and brought a masterpiece into the world. Those who know her will agree that still today she sings her "LifeSong" and it has been heard all over the world and brings smiles to thousands of faces. I listen to the song titled "LifeSong" by Casting Crowns and I think for sure it was written about Jessica Kaylor. You decide, go to

There is none like her, an inspiration to all who meet her and I am forever changed from knowing her. I count myself blessed to call her my friend; Jessica you are a link of Gold in my chain of life and I thank God for you and your precious family!!

Your Friend,

Lisa Smith

Anonymous said...

Jake You probably don`t remember me. You`ve only seen me two or three times in Gilda`s group. May God lift you and your family up to His heart and give you comfort. May the Grace of God hold you closer to Him.Looks like you have been blessed with a wonderful group of girls. God Bless you today. Lynn

Lorri said...

Hi...I just hear about you at the YSC board. Wanted to say that I will be praying for you and your family. With love, Lorri Steer

Jeff Showah said...

Jake and Jessica,

I haven't known you guys very long. However, the times I do get to speak with you, read your blog, or hear about you from someone else I feel as though I have been brought in closer to the Savior. May the Lord Jesus continue to shine through you in the midst of your trials and forevermore.

Grace and Peace,
Jeff (from Grace Cov. and down the street)

Anonymous said...

You and your family have been, and continue to be in my prayers. I will pray that peace and comfort will rain down on you, and that you will get to go home soon.
-Kristin Sigman

Anonymous said...

May God be so near to both of you and your girls, and your family that you feel His presence every moment. In those moments I pray He will meet your needs in His most perfect ways . . .

Thanks so much for sharing your journey with all of us in the midst of all that you are going through. I think that is a real sacrifice!

Heather Brooks & Family

Anonymous said...

jake and jess,
i always read your blog at school, but the filters won't allow me to reply. so tonight, i'm at home thinking of you both. you are being prayed for by so many people. i just hope you can feel some peace and let us shoulder the burden you are carrying right now.

may God give you strength, peace and grace.
in Him,
holly riggs

Anonymous said...

Jess & Jake,
Thinking of both of you and your beautiful girls. I just wanted to say that I passed your name over for a world wide prayer for you this morning Jess. May you feel comfort and not be in so much pain.

Julie London

Carla said...

The Lindberg family is still praying! Here is a Psalm that reminds me of the Kaylor family:

Psalm 34:1-9
I bless God every chance I get; my lungs expand with his praise. I live and breathe God; if things aren't going well, hear this and be happy: Join me in spreading the news; together let's get the word out. God met me more than halfway, he freed me from my anxious fears. Look at him; give him your warmest smile. Never hide your feelings from him. When I was desperate, I called out, and God got me out of a tight spot. God's angel sets up a circle of protection around us while we pray. Open your mouth and taste, open your eyes and see— how good God is. Blessed are you who run to him. Worship God if you want the best; worship opens doors to all his goodness.