Monday, May 30, 2005
Jess
One last thing. Yesterday I felt like God was forwarding my prayers to people. The best example of this is when I really just wanted to complain but without hurting anybody's feelings. Too often yesterday I was frustrated at someone but it had more to do with me than them. Right then the phone rang and I was able to let all my frustrations on someone who didn't mind.
Sunday, May 29, 2005
She's coming home!
She definitely does not feel like running a marathon, she is groggy from the pain medicine, she still feels out of sorts BUT the doctor said that when he compares today's CT scan with Jessa's previous one, there is great room for hope. Her doctor today was an awesome Christian man, he definitely knows all about hope and he has now added Jessa to his prayer list!
Thank you, Overman's for getting up at the crack of dawn and asking your family in Europe to start praying. They were answered!
Happy, happy Sunday,
Aunt Sandy
Poopy-Diaper
Jake called from the hospital and asked me to update the BLOG as he was in a bit of a state this morning when he blogged-on after receiving news about Jessica. Jessa has been staying with her grandparents for a few days after chemo so that she would have a little time to recuperate. She woke up early this morning feeling pretty yucky everywhere as well as had shortness of breath. After a few phone calls to her doctor, the decision was made to take Jessa to St. Paul's to be assessed. As of this posting there is great news and news that we haven't received yet! The lung e-xray was clear, she is breathing much easier with the help of a little oxygen and they are going to do a CT scan to rule out any blood clots around her lungs before admitting her to Zale Lipshy. We will keep you thoroughly updated as I believe a dozen of our family members have decended on St. Pauls. (Betty, Judy, Mike, Bob, Jake........and I'm sure more to come!)
We are so thankful that all who see this posting immediately go to Jesus in prayer for Jess. We have all awakened Heaven this morning!! The Kaylor's continue to stand on Jesus' promises-everyone of them!
Hebrews 4:16 Let us then approach the throne of grace with faith and confidence, so that we may receive mercy and find grace to help us in all times!
Ephesians 2:8 For it is by grace you have been saved, through faith-and this not from ourselves, it is the gift of God!
We are now on poopy diaper #2, Katelyn is going to the show with one of her best friends, and Jadyn can't understand why Aunt Sandy won't add sugar to the already sweetened applesauce. Life is fine at the Kaylor home-----send your prayers of complete healing for our precious Jess.
Love,
Aunt Sandy
Urgent News
Friday, May 27, 2005
Glad to be back on chemo (really)
At the benefit dinner Wednesday night over and over again people told us how much they loved us and one person in particular really stands out. Her name is Barbara Stidman. She has been a big comfort to us ever since Jadyn Rose went through the worst of her treatments for her developmental hip dysplasia (i.e. traction 22 hours a day). She understands first hand how it is to allow your child to suffer so she can be whole. It is for this reason I think that she loves Jadyn so much, and Jadyn loves her (and her husband Roscoe) back with her whole heart. When Jessica was diagnosed with breast cancer, she began taking every opportunity she saw us to love on us. As for me, when the news was still fresh and I wanted to be left completely alone and be completely surrounded by loving people at the same time she knew completely how to respond to me. With understanding in her eyes, she told me that I didn’t have to say anything and gave me a big hug. It is Barbara that put “wheels” to our beloved pastor’s suggestion to have another dinner for us. For me the highlight of the night was meeting the husband and wife team from Colter’s that donated the food for the event (and I might add that he served meat and she served cobbler). We couldn’t visit long (there were hungry people wanting desert), but I was very impressed by these two high quality individuals.
Thursday was the last day of school for me (yep Texas schools end in May not June and start back in August not September if you’re reading this and you live in another state). I love my kids this year immensely, but it has been a stressful year for me and I was very relieved to be finished. I’m going to miss teachers like Karen Lawson who had her students sign a card for me every week. People say that the benefit dinner at Martin really brought the community together; I know it sure has brought our school together. There is something amazing in forgetting about your own problems and turning to help someone else. At one point during the dinner I saw one of the biggest advocates for the dinner, my principal, walk by carrying a mop. I have always been impressed by servant leadership. For me mopping up a mess is a bigger accomplishment than winning a prestigious award.
One thing our family has learned is how much people need when they are going through something like this. What I mean is we have prayed for people that our going through problems, visited them, brought meals to them but that’s it. People have shown us how to minister to others. We are prayed for every minute of the day. Our grass is cut. Our kids are fed, cared for, loved on. When I am ready to give up, someone is there for me. When Jessa’s world is falling apart there are people holding it together. It is a lot easier to do a little something for someone, but a lot harder to really love them. My wife and I share the same opinion that we are not as special as the way people have been treating us. If we are extraordinary, it is because of how we have been loved beyond what we deserve. It is other people that have shown us how to have joy even when you’re crying, how to have peace when your soul is in turmoil, and how to love when you are in need yourself.
Last night as I was looking at my wife without her make-up and thinned out hair I thought about how beautiful she looked.
Today Jess went to chemo for the third time. We were both eager to start back after Jess not being able to have it last week. There was good news. For starters the infection around her port is gone! (which is amazing because it was starting to come back this week) The tumor underneath her arm is gone. The one in her breast has shrunk another cubic centimeter. We will know about the status of the other ones that cannot be felt in about 2 and half weeks when Jess has her 2nd PET scan combined with her 2nd CAT scan. Perhaps the best bit of good news is that I no longer have to give my wife shots. She was starting to get little "bruise constellations" on her stomach including one rather large "sun" and we both were hating it. Today, we were at UT-Southwestern (specifically the Seay building) a full day, but the chemo drip took only four hours and Jess was able to sleep for at least two of those. We are trying yet another nausea drug this time—we want to find the perfect one for Jess. I think this one is called something like “Zophran.” If you are praying for us, pray that Jess is able to get the rest she needs these next few days. Please pray (and I am not making this up) that I am not a jerk. I am really stressed out right now, I can’t sleep, and even though those are things I can’t control, I need to be the man God has called me to be.
Tuesday, May 24, 2005
A Hug in the Mail
Yesterday night, Jess and I got to go out on a date. It is awesome being able to spend time with her when she is feeling good and we don't have to worry about anything for a little bit.
Today was a little crazy at school-- they are restless as a husband staying awake worrying about his wife. It was a little crazy at home too-- Jessa was definitely stressed. Katelyn wasn't feeling so good, and the Yikes were taking out lots of stuff but nor putting it away. As I was putting down our girls to sleep after a long day; Bryn kept saying the same thing except I couldn't hear her because she had her pacifier in her mouth. I lean over, exasperated, and tell her to take her pacy out. The only thing she wanted to say was " I wuv you" (she can't say her "L's" yet). I think it is moments like those when God gives me the rest he promises.
The last thing I would like to say is if there are any Wood teachers reading this who helped out at the benefit dinner thank you so much for volunteering your time last Thursday night. I find it simply amazing that you found time to help out during possibly the most busy and stressful time of the school year.
Monday, May 23, 2005
Two days left
Last Friday was incredible because Jess was lying on the operating table all prepped for surgery to take the port out (a bad thing) when he felt around the port and coudn't feel an infection. She got to keep her port in. Keep praying for the infection to dissipate though because it seemed to be flaring up again this morning. This Wednesday we are having the final benefit dinner at Lake Arlington Baptist Church at 5:30. I have been very proud of Jessica because although she is extremely shy and doesn't like being the center of attention, she has been both cheerful and brave at the last two. The most amazing thing for me has been that we have not asked anyone for help; everyone has asked us if it would be alright if they helped us.
One last thing, Jess went to the store yesterday and came back with Breast Cancer Toulet Paper. My guess is the reason they partnered with the Susan Koman Foundation is that they want to wipe out breast cancer (you can go ahead and groan now).
Friday, May 20, 2005
Unexpected good news
I am sure you many of you mothers have shared this similar experience with me: my child seems to be tugging at her ear while screaming; I call the doctor and insist to the nurse that my child be squeezed in at her earliest convience; I then make it to the doctor only to have my child sit beautifully in the office while the doctor can't find a thing wrong with her ears...
Well the surgeon couldn't find a thing wrong with my port! He said we can talk later if it swells up again, but we were going to leave well enough alone. Huge praise! It was going to be quite a hastle to have it out/put back in, etc... so I am very grateful for this unexpeced blessing.
Another good thing was that they scheduled my next chemo round for Friday the 27th. A whole week away! I am looking forward to a good, calm week before treatment!
While I was in the office, and my doctors conferred, they decided I needed another core biospy to clear up an decsrepancy with the earlier biopsy. It will affect my treatment options in the future, so please be in prayer that they would get a consistent and clear result with this test.
Thank you all!
Smile muscles under attack
We had such a beautiful evening last night that even this morning, my smile muscles still hurt from smiling and laughing! Our family attended a benefit last night in our honor at Katelyn’s school, Wood Elementary. I know I am biased because we go to Wood, and my wonderful Aunt Sandy is the principal, but there is something so different and special about Wood. It is the people. The people who surround me with care and love and support, and who would do just about anything for me. You all inspire me to be the type of person I want to become.
The event was so beautiful and personal, fun and uplifting, with good food and great people, a super band, and an awesome raffle.
I was so very touched to see so many of you there. I am continually amazed at God’s provision. I stand in awe at how so many of you come up to me and offer help. I know the girls would all have a place to go and play each day of the summer if I took each of you up on your offers! The amazing thing is, I know that I could call and, you would help. You are not just trying to be nice and helpful. You are nice and helpful.
Lately, I’ve tried to take in moments that become like snapshots in my head; I have new ones from last night:
- My aunt Sandy sharing our story up on the Wood stage
- Watching Jadyn and her cousin Kaylee holding hands and swinging there arms all around the cafeteria.
- Seeing Jadyn and Bryn dancing with the music
- Looking out and seeing so many of Katelyn’s past (and future) teachers lovingly working for this event.
- And so many more… it was a wonderful evening.
Thank you Donna for organizing it all…
Tuesday, May 17, 2005
Bad News and More Bad News
Here is the rest of the prayer calendar as promised:
5/17 Pray for Jessica to be saved by the Lord's hand Is 59:1 5/18 for anti-nausea drugs to be effective Matt 9:35 5/20 Pray they would rest in the Lord Ps 37:3-7a 5/21 Pray the Lord would ggive Jessica strength 5/22 Pray for Joy Is 55:12 5/23 Pray that God would be their rear guard ans satisfy Is 58:8-11 5/24 Pray they would know the Lord is near 5/25 Pray they would be anxious for nothing Phil 4:6-8 5/26 Pray they would cry out to the Lord and be healed Ps 107:19-20 5/27 Pray they would trust God's plans Jer 29:11-14a 5/28 Pray they would know Jesus better 5/29 Pray for protection from the evil one II Thes 3:3 5/30 Pray for good sleep and rest Prov 3:24 5/31 Pray their faith would be enlarged II Thes 1:3
Monday, May 16, 2005
Praises
Two other items of note: I am sorry that I have not put the prayer calendar on here for May (I'll put it on tomorrow as soon as I can put into the right formatting) and Jess pointed out that in addition to those things I mentioned yesterday, she also has breast cancer soap and breast cancer Kleenex.
Sunday, May 15, 2005
It's the new orange
This morning when Jess was trying on a wig, Bryn (our youngest daughter) spoke up and said that she wanted to take off her hair too. Even though she is only two, she is the funniest person I know. She loves to imitate people. One time I yelled at the Yikes to "Stop it right now." Jadyn looked scared that she was in trouble, but Bryn turned right around, imitated my posture exactly and said in her best daddy voice "Stop it right now!"
There is a benefit dinner coming up for us at Wood Elementary (where Katelyn is a student and Aunt Sandy is the principal) this Thursday. They have gone all out in preparing for it. For Jess, God has been impressing on her heart that it's not about the cancer it's about the journey. They are calling the dinner "A Journey with Jessica" and will be giving everyone a bracelet with that same slogan. To top it all off Macaroni Grill is donating the food.
Her next chemo treatment is on Thursday. I have been telling people that it is round 3, but really since she gets a triple dose it's like getting round seven, eight, and nine. She really is very brave and that includes the first day I gave her her shot (I was just kidding about what I said earlier; she barely cried and the fingernail marks on my arm are starting to fade). Did I mention that it's a big needle and it's most effective when given in the stomach? I now tell Jess to wiggle her toes so she doesn't have to think about it and she hasn't gotten another bruise, to match the ones she got in the hospital, the last two times.
Friday, May 13, 2005
I shot my wife
Jessica's sister, Hope, is a nursing student who gave Jessica's lovenox shot this morning. However, Hope is leaving for the weekend and so guess who got to give her shot tonight. Now, in Jessica's defense she has been extremely brave through all of the previous trials and tribulations she has faced. However tonight she had more drama than a daytime soap opera. You would have thought I was about to do brain surgery. And yes she did survive.
Thursday, May 12, 2005
I'm home!
Amy, my case manager, tried one more time to convince a reasonable insurance claims manager at my insurance company to pay for the shots outside the hospital, and it worked! This is great news, especaily since I am still at a 1 blood level and it could have taken many more days to properly regulate it. Please continue to pray for this clot that it would dissenegrate while the Coumidin does its job of thinning my blood, and that the port infection would continue to go away with oral antibiotics.
There is no interruption in my scheduled chemo, round 3, next Thursday.
God is good all the time.
...all the time God is good!
Wednesday, May 11, 2005
Live, breaking news
I have found one benefit to staying at the hospital for so long, I am learning this hospital inside and out! For example, when I came into the hospital, I was stuck in my room, watching CNN, attached to an IV and eating just what they gave me.
Now, I can discovered I can "order" practically whatever food I want, I have a VCR I can watch movies from, I can wander the halls to see beautiful downtown views, I can go down to the 4th floor outdoor atrium, I can ask for a diet coke with good (Sonic-esque)ice anytime I want, I can get my IV taken out by asking nicely since I am off my IV meds, and now I can use the nurses computer to check my email and write to you!!
Now if I could just get a suite for my husband and girls, I just might enjoy my stay a little longer! That and getting a "Do not distrub" sign for the door and I would be set!
But really, I am feeling good, resting up, but ready to get going. Pray now for my body to quickly react to the Cumoden (sp?) pill. My blood needs to be between a level 2-3 for the doctors to feel comfortable discontinuing the Lovinex shot which works to thin my blood to prevent futher clotting. Normal blood is a 1, and it takes 5+ days for the Cumoden to work. Thanks for your thoughts and prayers, phone calls, and also, thanks to all of you who are for taking care of my husband and children in my (long) absence! You are all much appreciated!
Well Rested
Tuesday, May 10, 2005
Argh!!!!!
Monday, May 9, 2005
Hopeful About Tomorrow
Sunday, May 8, 2005
Mother's Day
Saturday, May 7, 2005
Weekend Adventure
Friday, May 6, 2005
Jess at Zale (updated)
On a completely different note, several people have told me that they wish they could post comments on this site. Well you can. Just click on the lower right of the post where it lists the number of comments already posted. Jess and I regularly read them and you can too.
10:05 PM I just got back from seeing Jess at Zale Lipshy. I know a little bit more but not a lot. There are really two problems. The first is that she almost certainly has an infection around the site of the port. They are already treating it with antibiotics. It really is a good thing she has an infection because otherwise they would not have found the second, unrelated problem: a blood clot in her arm. They are already treating the clot as well, with a blood thinner. The cause of the clot is thought to either be a side effect of one of the chemo drugs or a result of the surgery when the port was put in. I am worried about her just because I am her husband, but also I feel a great deal of relief that they caught the clot early. She has been still tired over a week after her chemo, and now we have a better understanding of why. When I left, she was in good spirits but tired.
Wednesday, May 4, 2005
On second thought...
Monday, May 2, 2005
Yes, As a Matter of Fact their Daddy did Dress Them
Jess and I are moving in opposite directions. She is feeling like she can go out and do stuff today, but I am feeling like I need a really, really long nap. Having said that, this time around it has been much easier. For one thing Jess did not get as sick this time (not as nauseas, no throwing up). I think she was a little more tired this time, but there is a simple cure for that: rest. On my end I had more people helping out this time with more stuff (like getting the kids dressed in the morning-- did I mention I have three girls? Boys I hear do not care if there shirt and shorts match let alone whether or not there shoes and hair scrunchies are color coordinated). Jess spent the first two nights at her grandmother's (better known by my kids as MeeMaw) and then her dad from