Monday, December 26, 2005
Ho Ho Ho! Merry Chiristmas!
We had my Mom's entire family home for the holidays at my grandmother's house. My mom is one of 7, so there were over 30 of us. It was a great time of eating, visiting...did I mention eating! I love having my whole family together. When everyone comes home, it is like they never left. It was also a beautiful day (about 70') so they were outside most of Christmas day.
Physically, I am feeling fine. I had my second infusion of Zometa last Thursday and it was even easier on me this time around. I get a little more tired, but I am getting used to that and knowing what to do to help prevent it...umm, that was a no brainer...rest more. I have another treatment and a doctor's appoinment on the 5th of January. Jadyn will have her surgery right down the block from my hospital on the 3rd. We are looking for a van this week so it will be possible to transport our family in the coming weeks with Jadyn taking up a whole row to herself. Send your thoughts and prayers our way and shopping for a used car is so stressful for a perfectionist like me.
Monday, December 19, 2005
Jess Ran Off to Mexico
Thursday, December 15, 2005
Blessed
Monday, December 12, 2005
Monday, December 5, 2005
Infection update
I still have no side effects from the chemo pills I take daily. I have even stopped watching my hands for signs of peeling or tingling. I put lotion on them still about 3 times a day, but thankfully no signs yet!
I am trying to get motivated to put up something that resembles Christmas in my house. Right now, I still have a fall wreath on the door and a pumpkin on my table. I'll get something together, but it might be the week before Christmas at the rate we are headed! Can anyone relate?! Decorating requires cleaning, which also requires time! The girls are so excited about Chirstmas and Santa and baby Jesus. Bryn said the other day while eating breakfast, "I think baby Jesus is hungry too!"
Take care,
Thursday, December 1, 2005
Port infection
Saturday, November 26, 2005
The Pre-Dr. E Show
Friday, November 25, 2005
Thanksgiving
This morning Jess is going shopping with two of her very good friends. I think she'll be fine, but I suggested she rent one of the motorized schooters I always see advertised for older folks. Only one of us thought that was funny and it wasn't her. It's amazing to me how strong she is even when she is weak. I hope you had a wonderful Thanksgiving yesterday.
Thursday, November 24, 2005
Xeloda
Wednesday, November 23, 2005
PET Scan results
Friday, November 18, 2005
Results from Scan Next Wednesday
Monday, November 14, 2005
Scan tomorrow
We went to a Jeremy Camp concert last night. His music has very much ministered to our family. Since he lost his wife to cancer many of his songs deal with issues our family has faced, and so it was very powerful for Katelyn, Jessica, and I to be singing together knowing how it has touched each of us. The one song I sung with tears in my eyes is this one, entitled I Still Believe: I still believe in your faithfulness/I still believe in your truth/I still believe in your holy word/Even when I do not see/I'll still believe.
Sunday, November 6, 2005
Tuesday, November 1, 2005
Alive!
In every one of these conversations and there were again a ton of them-- they always said the person they knew was now dead (Jess would like to interject here as I am reading this posting out loud to her so she can give it the OK that perhaps there were exceptions-- although she can't recall any of them right now-- Now she doesn't like my adendum and now she doesn't like me continuing to comment on this so I'm going to stop now)
Anyway, I don't think they were intentionally bringing up a dead person to discourage Jess, but I am very glad you now have a very different response when you meet someone who is diagnosed with stage four cancer. Future conversation: You: I know someone who was diagnosed with stage four breast cancer. O.P: Oh really who ? You: Jessica Kaylor O.P: How is she doing? You: She's alive and doing great!
Kaylor update
Jess is having an infusion today. I love the sound of that word. It sounds so much better than chemo. The word"infusion" just rolls off the tongue. It makes it sound like Jess is going to something wildly fun and exotic instead of get a dose of Herceptin into her port. Jess told me this morning it would take about three hours from the time she checks in to the time she checks out. A lot nicer than then the all-day procedures she used to have to go through. Three hours will give Jess plenty of time to get caught up on her bible study and get some much needed alone time.
Jadyn turned four on Saturday. She and her friends went to a salon where they got to dress-up like princesses and get their hair, nails, and face done up. She looked absolutely gorgeous. We still don't have a digital camera, but I'll be able to put a picture soon because several people are going to email some to us.
Jadyn is getting surgery on her hip to correct the hip displasia she has battled for most of her life on January 3rd. Please pray that it is succesful this time.
Last night for Halloween Jadyn and Bryn went to a festival at our church and Katelyn went with a friend to go trick-or treating. It was appropriate that Katelyn went with a friend because Katelyn was Thing 1 and her friend Chandler was Thing 2 (from Dr. Seus). Bryn was Belle from Beauty and the Beast and Jadyn was Minnnie Mouse. They all looked fantastic.
Wednesday, October 26, 2005
Friday, October 21, 2005
Twins
Jessa's hair is coming back, and it's as soft as baby hair. There wasn't much point in shaving my head before since she always wore a wig or a bandana. However, she is wearing her "buzz" cut out in public now, so I decided to buzz my hair too. Actually Jess buzzed it since I have as much small hand cordination as a horse ("yes" I know they don't have hands) so if I had done it I would have looked like I and Bruce Willis had the same hair dresser. Having the same hair cut is the closest Jess and I will ever come to looking like twins. Our digital camera had a digital breakdown, but when we get it fixed/get another one-- I'll post a picture.
Jess has her first scan to check to see if the cancer has come back, since her remission, in about two weeks. She is more excited than worried-- can't wait to hear them say "still no sign of cancer."
Tuesday, October 4, 2005
Breast Cancer Awareness Month
Two wonderful things were given to me this past week. As this month is Breast Cancer Awareness month, the MOPS (Mothers of Pre Schoolers) group I just joined put together a basket for me and another woman undergoing treatment. So many women brought items to be placed in this beautiful, bountiful basket! When I saw it, I was in disbelief, and so very touched. It was filled and overflowing with lotions, bubble bath, books, CD’s, candy, candles, bags, earrings, bracelets…Each item was so carefully selected, and I will treasure them all. It felt like Christmas looking through each item! The girls had fun looking through it all too.
Go buy something pink! My family teases me that I wear it 24/7!
Sunday, September 25, 2005
A Courageous Kaylor
The second brave moment came today when Jess didn't wear her hair to Sunday school for the first time. I think it's weird how we sometimes "dress to impress" in church when we really just want people to accept us for who we are. I think our Sunday school did just that this morning-- accepted her for a beautiful woman who has fought a hard battle.
Tuesday, September 20, 2005
Infusion
Sunday, September 18, 2005
Happy Birthday Jessica!
I feel like God special picked Jess out of the world to be my wife. We both came to faith in Christ as adults and met each other two years later. It is true that Christ has redeemed me but he has used Jess to do it. She has inspired me to be the man I should be and taught what it means to really love someone. She has loved me when I have been unlovable and she has grown into a woman I am very proud of. I am amazed at how many people know what I know: that she is an incredible woman. Happy 30th Jess!
Thursday, September 15, 2005
Sick Trio
Wednesday, September 14, 2005
The Last Week
Jadyn's swollen lymph node is going down now which is a big relief. We look at and go "it looks so much better" but first time viewers look at it and go "oh my gosh, what happened."
Katelyn's birthday was Sunday and she turned 11. For some reason eleven sounds so much older than ten. Ten sounds like "My daughter is in double digits now," but eleven sounds like "My daughter is rapidly approaching becoming a teenager." Jessica took Katelyn and a few friends (Katelyn would have taken a bus load if she could have) on the train to spend the night in a hotel in Dallas. They apparently (I say apparently because I know better than to spend an entire night with four rapidly approaching becoming a teenage girls) had a ball. There was an ice skating rink right outside the hotel and they skated until the rink closed for the night. Katelyn was exstatic at being able to eat at McDonald's-- a place that Katelyn normally only eats at when someone other than her parents takes her (usually that person is named "grandma").
Jadyn seeing all the excitement around Katelyn's birthday has been asking every day when her birthday is (it's at the end of next month).
Jess is getting her Herceptin infusion next week. The infusion is given like chemo through her port, but without the throwing up, hair loss, and certain persons walking around the house in a daze because mommy isn't here right now. There are no side effects to Herceptin! It's an antibody booster that she'll recieve every three weeks.
Thursday, September 8, 2005
A diagnosis for Jadyn
Jess went out with a group of friends tonight to celebrate her remision-- I think its wonderful that she is connected to so many people that care about her. The group tonight was pretty special because they are made up of a group of young ladies who met every week to specifically pray for Jessica (how cool is that!!!).
Jadyn is able to buckle her own seat belt, but Bryn is not. Jadyn could let this matter go unnoticed but today in the car she very loudly announced it to Bryn. Bryn got upset in a few mili-seconds and screamed that she was "big too." I stepped in and told Bryn some of things that she can do that a baby cannot do: walk, talk, sing, etc. When I got to the sing part, Jadyn and Bryn both forgot that they were upset with each other and began to sing an artist's rendition of "Twinkle, Twinkle Little Star." Jadyn creatively made up new lyrics to the song (for example not only was her star "up so high in the sky" but it was also "down low") and Bryn sort-of sang along with her. I say sort-of because when Jadyn would sing a new line-- Bryn would try to sing that same line as best as she remembered Jadyn doing it. I know they didn't realize it, but I guess there "big enough" to forget to fight and enjoy each other.
Monday, September 5, 2005
She's Got Hair
Jadyn is still not feeling well; Jess stayed home with her yesterday.
Friday, September 2, 2005
Update on Jadyn
I rode my bike to school today. There is a teacher at my school who is going to start riding her bike ten miles to work from Mansfield, so I thought surely I can ride my bike three mile to work this Friday. I think I learned three important things: it's hot in Texas, I had more difficulty catching my breath than I thought I would, and it's good idea to check to see if your gears are working properly on a trial run before you decide to go on a three mile trek.
Tuesday, August 30, 2005
The "R" Word
On Sunday Jadyn's lymph node swelled up to the size of a golf ball. She's on antibiotics and has been sleeping in our room so we can keep an eye on her. We are also going to call soon to schedule her surgery for her hip.
Tonight was Open House for me. Since the parents are taking time out of their schedules to come up to the school I try to make it fun for them. Tonight we played trashketball which is a combination of trash and basketball. I asked them questions about my class, English related questions, and questions about YJH and if they got it right they got to shoot a paper wad into a wastebasket. If they made the basket, they earned their child points on a future assignment. I had a great time with them too: this year's group of parents is very, very likeable.
Thursday, August 25, 2005
God's All About the Details
Wednesday, August 24, 2005
Follow Up
They saw no advantage to surgery at this time. They also want to save radiation to use later if needed. (Evidently you can only radiate a certain amount). I love what my friend Alyson said after I told her this: "We won't need it... We won't need radiation ever." She is so positive! I love that, and it's true, I won't need that radiation anyway!
I will keep taking a Lupron shot which shuts down my ovaries, a aromatose inhibitor once a day (a pill form like Tamoxifin or Femera) and a Herceptin infusion every three weeks. All very do-able, and easy to handle. I will ask Monday how long I am to do this regimen. But, I like what a close watch they are going to have on me.
I think I'll follow Alyson's advise to this step too, I'm glad we're doing all we can to prevent this recurrence, but it's not going to happen!
Still floating on a cloud,
Jess
Sunday, August 21, 2005
Celebrate
Friday, Jake celebrated in the halls at Young, our whole family called and emailed all we could, and my Dad took our immediate family out to dinner. Yesterday, we celebrated at my Aunt Diane and Uncle Mike's house. It was my grandmother's birthday so we had already planned a get-together. It was a good thing too because I could not go another day without hugging my family! They gave me a beautiful gold necklace with a gold cancer "ribbon". I had already recieved from them a silver one, but the new one symbolized a new chapter, one of victory and assurance. Today, we celebrated at church when our pastor called us up to the stage to give praise for this healing and pray for our family as we continue this journey. I was so glad when he also prayed for (as we are too) the others inside and outside of our church that are battling cancer right now.
I know there is more to come. But, I am so confident of this healing and completion that I can't wait to get started. Tuesday, I will know more about the coming stages. But count on me asking the doctors on my appointment Thursday, "Have you ever see this happen?!?"
Celebrate!
** Thank you for your wonderful comments from Friday's post. I was visiting with my friend Sharon tonight when she said something I said have so often these last months: sometimes I didn't know what to pray, or how to do it. Sometimes I was so tired and ill, and weak, and drugged I didn't know what to say or do. And you intercede. You lift me up when I can't find the words for myself. For that, and so much more, I am so very grateful. I love you **
Friday, August 19, 2005
Shocked!
I had my MRI today. That was a unique experience that I can spare you the details of (just imagine how they might do a breast MRI, and then imagine 10 times more awkward!) Then, I want for my appoinntment with my surgeon, Dr. Euhus. Sine they are on the same floor, and all computerized, the doctor just walked down the hall to get my results.
He came back to say that the MRI was completely clear! Now, when I told my Aunt Sandy this she said she was overjoyed, extatic, jumping up and down, but not shocked. She knew God could and would heal me. Well, I was shocked. I am humbled and grateful, but still in shock. Shocked at God's amazing provision and the way my body accepted these chemo drugs. I know God is teaching me that I do not have to be shocked any more by his complete protcection and provision over me. He has proven this to me over and over. I get it now!
Dr. Euhus also told me the results of my scans on Wednesday, a CAT scan of my abdomen, chest, pelvis, and a nuculear bone scan. All these also came back completely clear!
They cannot feel any lumps or masses, and they cannot see any on any scan or test they have run so far!
Amazing!
The next step: Dr. Euhus will be there to present his results at the meeting this Tuesday with Dr. Haley, and anyone else who has worked with me and has input to offer. It is Dr. Euhus' opinion that surgery is not the only way to prevent a recurrance in my case. I would not have a lumpectomy (since there is no "lump" to get!) so the option is a masectomy to remove all chance of recurrance. Dr. Euhus is not necessarily for this, since my cancer had metastisized, it has a chance of recurrance in all those other places, not just the breast. Radiation is an option, but also one that is unlikely according to Dr. Euhus' for similar reasons. He leans toward carefully watching the entire body for recurrance, and using a hormone reducing drug to keep cancer growth down.
That said, at Southwestern, they work as a team. So after everyone weighs in on my case, I will get an opinion from them Tuesday afternoon. Then, we'll go forward from there.
I am so excited about this news!!! I want to ask my doctors, IS THIS NORMAL?? But, I know the answer...no, it is not. It is a wonderful, amazing GOD thing, and I can't wait for the next step.
I love you all!!
The Whole Enchilada!!!!!!!!!!!!!!!
What this most likely means as far as treatment is hormone therapy to help prevent further tumors and regular check-ups.
Praise God! If you hear a loud noise right now it's just me shouting for joy.
Thursday, August 18, 2005
Yesterday's tests
Jess also had a bone scan. One cause for concern is the technician ordered an x-ray on Jessa's lower back after he did the scan. Jess said he didn't talk to her about why did the x-ray, but our hope is that he saw a treated area and not an active tumor.
Jess goes to the dentist today (why not get all the prodding and poking done in one week) along with Jadyn and Bryn who are going for the first time. As we were leaving the house Katelyn (our drama queen) let out a piercing scream followed by a yell "Jadyn and Bryn are going to the dentist?!?!?" Katelyn was just being overdramatic, but I am hoping that the Yikes will go into the car now without kicking and screaming.
Jess has at least one more test tomorrow (MRI) followed by a visit with her surgeon. I am more than a little bit nervous, but also hopeful.
Tuesday, August 16, 2005
Cast-away
Jess has two scans tomorrow. She has a bone scan at ten and a CAT scan at eleven.
Monday, August 15, 2005
Boringville
Today was perhaps the smoothest first day ever. The copier wasn't fixed until this afternoon, but my classes went just fine anyway. Katelyn had a good first day back too.
Tomorrow Bryn gets her cast off although (I'm not making this up) she really likes it and has grown attached to it. That said I hope she has had her fill of casts this year.
Jess has her first tests this week on Wednesday. I'm asking our God of the Possibles for the impossible-- that the scans show that there are no tumors at all. God will choose to do what He wants to do (and we are OK with that), but there's nothing wrong with asking for the whole enchilada, right?
Friday, August 12, 2005
Katelyn's Home:)
I am almost ready for school on Monday. I would be even more ready, but our school's one copier broke down. I should have known better and got my copies done earlier because our copy usually dies right before exams have to be run off and right before school starts.
Wednesday, August 10, 2005
A Good Day for Jess
Other than the lingering bad taste in her mouth, Jess had another great day. Jess did the Hip-Hop Class again at the Y today which is a pretty strenous workout. She felt a little more comfortable today among the dancing divas because there was one really bad dancer who had about as much style as a sumo wrestler doing a belly flop. However, as her husband I figure its one more thing I can do to support her.
I think it would be really cool if next week Jess's scans revealed that no surgery is needed. Keep on praying warriors.
Tuesday, August 9, 2005
Thoughts from Jadyn
We were also talking to Jadyn about getting her cast at the beginning of next year. Now when Jadyn was about eighteen months old we had to put her in a traction contraption the whole day except for meal times, baths, and diaper changes. If we wanted to take us with her, we could take her out to put her in her car seat (for short trips), but then we had to put her back into traction. The only way we could walk with her is to put the whole contraption into a wagon and pull her. We have since given the wagon to charity. To flash back to the present, when we were talking to Jadyn about her cast at first she was fine, but then she said "Oh no!" Jess and I both anxiously asked her what the matter was. She told us, "We don't have the wagon anymore."
Jess is feeling much better today. She has a constant bad taste in her mouth, but the queasiness is pretty much gone.
Sunday, August 7, 2005
Playing Catch-up
I had both an enjoyable and interesting trip. I got to see a ton of Heather and Terry (who I had never met before) which was fantastic. I also got to spend a lot of time with my dad. It just happened to be underneath his house in the dirt with water pouring down on me. You see my dad bought an old house from the 1920s and has been fixing it up. It just so happened that he chose to replace the old copper and iron pipes with PCVC ones the day I got there. We started in the morning and worked non-stop until the next morning. I took a shower about 3:30 AM utilizing the water pipes we put in and it felt wonderful. Actually I really enjoyed helping my dad put the pipes in and the rest of the time I got to spend with him and the rest of the family.
Heather's wedding was beautiful. She arrived in a horse draw carriage and got married in a garden park. She designed all of the boquets and table arrangements and I must say I was very impressed. I am very grateful for my Jessica approving of the trip.
Thursday, August 4, 2005
Chemo day
Dr. Haley had to write down her notes onto two pages this morning. We had a lot of appointments to make. The week of the 15th (of course it's the week school starts!!), I will have appointments for a MRI of breast and underarm, CAT scans of various other parts, a bone scan, and an meeting with the surgeon, Dr. Euhus. Then on the 22nd my doctors will present my case to a board that makes decisions about further treatment. I've said before on the blog, but I love that they all work as a team. I will meet with Dr. Haley on the 25th to get her update and to get started.
Even though I know the next days are hard, I am comforted by the fact that this is the last round of this type of a heavy "3 week" dose of chemo! My sister is spending the night with me tonight because Jake is still out of town. My Aunt Sandy has coordinated the rest of the weekend to have us all covered.
Even though I am so happy that Jake is spending time with his family in
Thanks for your prayers.
Wednesday, August 3, 2005
August Prayer Calendar
2nd Pray for healing for surgery and treatment plan Proverbs 8:14
3rd Pray for God’s timing with the surgery date Ecc 3:1
4th Chemo today. Pray for rest. Deut 32:10
5th Pray for strengthening 1 Peter 5:10
6th Pray that the Lord would be their helper Hebrews 13:6
7th Pray for peace for the whole family 2 Thes 3:16
8th Pray unity Col 3:14
9th Pray for no fear 1 John 4:18
10th Pray they cast all anxieties 1 Peter 5:7
11th Pray for strengthening Col 1:11
12th Pray they would put their minds on godly things Phil 4:8
13th Pray they would stand in the Lord Eph 6:10
14th Pray that God would do more than we ask Eph 3:16-21
15th Pray for protection 2 Thes 3:3
16th Pray peace to rule in their hearts Col 3:15
17th Pray that we would bear this burden Gal 6:2
18th Pray they would find Christ sufficient 2 Cor 12:9
19th Pray they would find triumph in Christ 2 Cor 2:14
20th Pray they would rejoice in hope, perseverance, and pray Rom 12:12
21st Pray they would abide in Christ John 15:4
22nd Pray their faith would rest on the power of God 1 Cor 2:5
23rd Pray they would be directed into the love of God 2 Thes 3:5
24th Pray they would take all anxiety to the Lord Phil 4:6-7
25th Pray God’s hope would fill them joy and peace Rom 15:13
26th Pray they would take refuge in the Lord Nahum 1:7
27th Pray they would trust the Lord as their rock Isiah 26:4
28th Pray they would trust God and not be afraid Isaiah 12:2
29th Pray they would run to the Lord the strong tower Prov 18:10
30th Pray God give wisdom to the doctors Prov 8:14
31st Pray for rest and good sleep for all Prov 3:24
Jadyn's hips... and hip hop!
Speaking of hips...
Tonight I took a hip hop dance class at the Y. If any of you are feeling down and want some good entertainment, you can come to my next class to watch me make a complete fool of myself with dancers that are about 17 and many others with just a ton of rythm. I do it because it's the best workout I get all week, and the time flies by. And, I fit right in with my do rag-bandana. It really is a good mind break. It's my goal this round to make it to this class on Saturday.
Tomorrow I am off to my 6 of 6...my 6th round of my 6th treatment. I am not necessarily looking forward to it, but I am excited that it is the last of this type! God has assuredly gotten me this far, I know I can do one more with His help. I am not expecting Dr. Haley to tell me much of anything new tomorrow. I think she will set up my appointment with the surgeon, Dr. Euhus. It is after that surgery consultation appt. that Drs. Euhus and Haley will meet to discuss the next phase of my treatment. I love that at Southwestern, the doctors are all part of a team. It really helps to have that unified plan of attack.
Thanks for thinking and praying for our family this week! We feel lifted up all the time.
Monday, August 1, 2005
Back to Work
Saturday, July 30, 2005
Plenty of Prayer (needed)
Jess and I had a wonderful retreat this weekend. Jess told me something really sweet on the way home. She said that she liked spending time with the kids, but that she really loved spending time with me.
Just a few days ago I talked about we handled Bryn's broken arm with practically no worry. Well I must confess that I am having difficulty leaving next week in God's hands (please pray for me). First of all I am starting work again on Monday for some staff training. It's not the training that has me stressed out; it is the idea of starting another season not at home during work hours and added stress as I again begin to teach junior high.
Then, after my second day of training I fly out for my sister Heather's wedding. I'm pretty excited about going, especially because she is picking me up from the airport and I haven't been able to see much of her as she has been finishing college and doing crazy things like doing scientific work on islands. The flip side is that we have been waiting on a date from the hospital for a check-up for Jadyn's hip, and we just recently got it... the morning after I leave. Please pray that her hip has fully formed and does not require surgery, pins, or any further treatment.
Then, Jess has chemo on Thursday. Please pray that I am able to turn the care of Jess and our kids over to our Sunday school class and Jess's family. Also please pray (are you getting tired of those two words in this blog?) that our kids will adjust well to whoever is watching them and also to temporarily not having both of their parents, that Jess will be able to relax (in fact if you just want to spend all of your time praying for that one that would be fine), and that the chemo/prayer would kick the cancer's butt.
Friday, July 29, 2005
Retreat and Shopping
We took Bryn for a checkup on her arm this morning. Jess asked the doctor if Bryn was predisposed to breaking bones since this is the second Brynny has broken an arm, but the doc said her bones look great. Apparently, Bryn has already gotten the two most common broken bones in a child of her age-- I don't know what the third is but I am hoping we don't find out.
Katelyn came home from camp today. She didn't waste any time in playing with her sisters. It was very sweet because Katelyn used to play store all the time with Jess when she was about four (notice I said Jess-- I play a lot of things with the girls but store is not going to be one of them). Jess would be the shopkeeper (complete with foreign accent and dressed up too) and Katelyn would be the shopper. Well today, Katelyn was the shopkeeper and Bryn and Jadyn were the shoppers. It was neat seeing the Yikes as delighted with their purchases as Katelyn was six years ago, but it was even neater seeing Katelyn pass "store" on to her sisters.
Tuesday, July 26, 2005
Kaylor Kids
Yesterday, Katelyn left for camp. The difference between this year and last year (when she left for the first time) is that she was very excited instead of nervous. Before she had even left she already planned sleeping arrangements with her friends. Also yesterday, Bryn said something very sad. She has been calling her favorite movie Barbie and the CrackCracker, but yesterday she called it Barbie and the Nutcracker. Before long she will not call flipflops, "flop-flops." Jess and I are a little sad because it means our littlest one is growing up.
Friday, July 22, 2005
Bryn's Second Cast
Bryn had two things wrong with her arm: nursemaid's elbow and a fracture just above the elbow. Yesterday, the doctor put her elbow back in place (ouch) and this morning (after we got the results from the x-ray back) I took her to get the fiberglass cast. Bryn has done really well through this and I'm really glad she didn't change her mind about the cast color after she got it on (it's purple). She did just tell me though that she is ready to take it off.
Jess and my mom at our at the salon getting pampered. They both got facials and haircuts too. I haven't seen my mom yet but Jess said it's a really cute bob. Jess's hair was similair to a new born baby's very short, soft, and thin: she got it buzzed. Even without seeing her, she is undoubtedly as beautiful as ever.
I'm looking forward to tonight. Originally my good friend Kelly Walker and his son-in-law Justin were going to come over and put in a ceiling fan for us. That has blossomed into a big get-together. Before we found out that Jess had cancer, she watched Justin's little girl Rylie. The Yikes grew really close to her, and they are really excited that she is coming over tonight along with her sister, her mom, and Kelly's wife and son. It is going to be a full house tonight, and I love having people over at our house.
Thursday, July 21, 2005
An Exciting Birthday
Despite all the excitement this morning it really has been a nice birthday so far. My mom made homemade cinnamon rolls (I love baked sweets) and I opened a present from Jess this morning that was a really sharp shirt. Tonight we are going to Cheddar's where I plan on having a big steak and a chocolate milkshake.
By the way Kathryn (notice the correct spelling) I appreciate the nice comment you left yesterday. I also thought it was hilarious that you mentioned that although I misspelled your name, you know how to spell "Jake." By the way you spell our oldest daughter"K-a-t-e-l-y-n" and Kathryn (notice again the correct spelling) there is really no need to comment this time.
Wednesday, July 20, 2005
Jessica is Home!
Before she came home, Jess kept saying over and over again that she doesn't know why we are making such a big deal this time about her being sick this time. To hear her tell it; she was barely sick. (Jess if you are reading this do not read the next line, but skip to the next paragraph) As for the rest of us, we think she got sicker faster and more intensely.
However, she is doing so much better for her first day home than she has ever done before. In fact she went and played volleyball tonight. And as I am typing this after midnight, she is still chatting away with my mom and our lovable (albeit a bit hyperactive) friend Katherine (OK Katherine now you can stop bugging me to write about you in the blog, and there is no need to respond to the hyperactive part in the comment section). Seeing as I am outnumbered gender-wise once again and strangely I seem more tired than Jessica I am going to bed while Jess continues to be the Engergized Bunny. Good night.
Monday, July 18, 2005
The Good, The Bad, and The Beautiful (that would be Jessica)
It has also been a tremendous help to have my mom in town. She has fixed pretty much everything that was broken in the house and helped Frank Blaha (who I love dearly) and I replace the leaky porch roof. We got to test out the reliability of it right away as it started downpouring as we scrambled to finish the job. My mom has also formed a tight bond with our kids (especially with the Yikes) and it has been really nice having a live-in grandma to help take care of them. Right now while I am home with a napping Bryn, Grandma is off teaching Jadyn to swim and Katelyn some strokes.
Friday, July 15, 2005
Good news for the doctor!
Hi all, sorry for the delay in getting this great news out; yesterday was pretty busy. My meeting with Dr. Haley went very well! We laid out a plan for the next months…a plan! I have never received such a long plan! Up to this point, it has been: we’ll attack this cancer as hard and as long as we have to. When I would ask in the past how many more treatments, or what is next, I would get: we’ll see how the scans look, or you have a special case with a lot of spreading, we don’t know the number you’ll need.
Well, no more wondering. At least not yet, anyway! I had a full round of my three week dose of chemo yesterday. In three weeks, August 4th, I will go in for my FINAL round of a 3 week dose! At that appointment, I will also be scheduled for an appointment with my surgeon, Dr. Euhus, and get an MR of my breast and underarm where the tumors still are.
I remember Dr. Euhus saying in an initial consultation that we might never be at the point where we will be doing surgery, and here we are!
My genetics results came in and I am negative for the mutative gene that predisposes you to breast cancer! I did not know quite what this meant for me. I knew it meant a lot for my daughters, sisters, and cousins, but I found out yesterday that not having this mutation helps me in terms of lessening my chance of a primary occurrence and ovarian cancer.
I was hoping to be put on weekly chemo yesterday, so that was my only mental setback. I was ready for fewer side effects, and I thought that was the path I wanted. Dr. Haley said she will probably send me for radiation after surgery and then some sort of weekly chemo for a short time after taking scans to see how we’re doing.
Wednesday, July 13, 2005
Cancer...FLEE!
I am writing you today because I am very mad at this thing called cancer. In just the last week (actually 4 days) I have learned of three dear people just diagnosed with cancer. The father in law of my friend Lisa was diagnosed with stage 4 pancreatic cancer. My friend Sheri was told she has thyroid cancer, and most recently, my friend and counselor at Katelyn’s school, Sharon Whitt, is having surgery tomorrow for cancer that has shown up in her abdomen lining and ovaries. Please pray hard for these people. I have felt great victory in my treatment so far. I know that these three friends will find victory as well. I will keep you updated.
Monday, July 11, 2005
Thursday, July 7, 2005
Judy's Birthday
On the home front Jadyn scored a hat trick in soccer yesterday. Well, almost. She scored a goal, had another one batted away by an overzealous parent (they let parents on the field to help-- but his isn't what they had in mind), and finally Jadyn kicked one into her own goal. I am very proud of her, and Katelyn too who stole the ball last night at her basketball game and then made a basket.
I didn't mention this yesterday, but I really appreciate all of you who like Jay Graham have taken upon yourself to pray for us. Thank you. To me, the most important part of this web site is letting you know what to pray for be that by the prayer calendar or from our updates. If you think about it today you can also pray for Jeremy Butler (one of the college students we taught in our Sunday night bible study this Spring) who had a cornia transplant today.
Also, on something completely random, for those of you who really like Slurpees (like I do) July 11th (7-11-05) is coming up next week and 7-11 has been giving away free slurpees on 7-11 the last few years.
Wednesday, July 6, 2005
July Prayer Calendar
Here is the prayer calendar for this month:
1st Pray for blood count to increase Luke 17:19
2nd Pray that there will be anxiousness Psalm 94:19
3rd Pray for peace within in their household Psalm 119:165
4th Pray that they seek the Lord to sustain them Isaiah 46:4
5th Pray for continued miraculous effective chemo treatments John 2:23
6th Pray for strength Isaiah 40:29-31
7th Pray for Jake and Jess’s relationship to strengthen Philippians 1:27
8th Pray that doubts and fears will be dispelled Isaiah 41:3
9th Pray that they will continue to fix their eyes on Jesus Hebrews 12:2
10th Pray for healing Malachi 4:2
11th Pray for wisdom of the doctors and any treatment plans Proverbs 2:10-11
12th Pray for rest Psalm 91:1
13th Pray that their rough places will be made smooth Isaiah 42:16
14th Pray that the Kaylor’s faith will continue to grow Acts
15th Pray that the girls will live together in unity Psalm 133:1
16th Pray that Jake, Jess and the girls will receive hope in each day through God’s word Romans 15:4
17th Pray that they will feel God’s love Romans 2:5
18th Pray that their stress will quickly be removed and replaced with joy Psalm 30:11
19th Pray for healing Isaiah 57:18b-19
20th Pray that the days after chemo will be better and Jess will be strengthened Psalm 22:19
21st Pray that Jake will be able to cast all of his cares on the Lord Psalm 55:22
22nd Pray for perseverance James 1:2-3
23rd Pray for rest for the entire family Matthew 11:28
24th Pray the Kaylors will rely on God Psalm 71:6
25th Pray that they will receive all the help they need Isaiah 58:11
26th Pray that they will have a renewed spirit each day 2 Cor 4:16
27th Pray that the armor of God will be placed on them daily Ephesians 6:10-18
28th Pray that the girls will obey Jake and Jess Ephesians 6:1-3
29th Pray for healing Matthew 11:5
30th Pray that their faith will be strengthened Romans 4:20-21
31st Pray for rest Psalm 62:5
Saturday, July 2, 2005
Shut Eye
Although I did get Jess a box fan to help keep her cool and therefore sleep better and burned another sleep CD with just the good tracts on it, the credit goes to medicine she is now taking to help her go to sleep. I for one am sleeping great! I think our bed feels very comfortable now, and I am now using the pillow Jess didn't like complete with allergen barrier. I have also been getting some "shut-eye" in a negative way: I got a tear duct infection in my eye on Wednesday and the swelling is just now going down. For a little while I could have passed Jess off as the next great woman boxer, but my eye is almost looking normal now.
Jessa's fifth round of chemo is on the fourteenth.
Tuesday, June 28, 2005
PET scan results
Greetings all! I am coming out of my best round yet (#4). It was not as easy as my “plan”, but it was definitely better than normal. And, as an added bonus, I did not end up in the hospital as I have on my last two rounds. Right now, I am feeling pretty good. Jake has mentioned this before, but the middle ground is hard. I feel good enough to come home, but have to deal with a nagging, upset stomach that is more irritating than painful for several more days.
Monday, June 27, 2005
Feeling Better
Last night Jadyn had her first ever soccer game and she played great (being three years old we weren't sure what to expect). She ran after every ball and scored her first goal. Her big sister Katelyn has been an inspiration to her and she was very excited that she was actually getting to play.
Saturday, June 25, 2005
Jessica is Home Early
Friday, June 24, 2005
Rest for the Weary
Tuesday, June 21, 2005
Jessica is Digging It
Normally, the day after chemo Jess could be mistaken for a lumberjack for all of the logs she saws. Instead of snoring the day away today however she was digging balls on the volleyball court tonight. As for me my reaction is half, “What are you thinking—get some rest!” and half “Wow, I so admire my wife.” Not only was it the day after chemo, but she got two shots today one to up her white blood count and one to up her red and she had a combined PET and CT scan. She spent the night here last night, but the next few nights will be spent at the MeMaw Spa and Pampering in
Monday, June 20, 2005
4 cycles down... and a new plan coming
Okay, a lot of family is thinking I'm wierd, but I am going to try a new think with this chemo round and I need your prayers. It usually goes like this: Day 1 (fine) Day 2 (fine during the day; get real tired after 5:00) Day 3 (I am tired and sleep all day and pretty sick to my stomach much of the day, too) Day 4 (little things exhaust me; feeling a little less sick to my stomach) Day 5 (feeling better...on the upswing) Okay, I do not want to do this every three weeks. When I did not have cancer and I felt a little tired, and my stomach hurt, I did not lay down all day. I did what I was planning to do. So sniffles, shmiffles... forge on, I'm a mother! Cancer, shmancer, let's get going!
Even as I write this, I can hear my Aunt Diane, mother, grandmother, husband...cringe. But it is just an experiment. If it does not work, I will go back to my rough 5 days.
So, that is my plan. I am going to rest for a normal amount of time and then I am going to get up, read, go work out, walk, eat small meals, or write thank you notes to all the precious people who help us! It's just an experiment. It's really for day 4 and 5: this time it means Wednesday and Thursday. Please be praying for me these days. I am still doing to take my medicines, just not the ones that knock me out. (Mom, I will still take naps :) I promise)
Thanks guys!
Keeping up with Chemo
As Jess mentioned earlier, we found out she is Her2 negative. After meeting with Dr. Haley, we found out she is going to stay with Herceptin because it is helping as the tumors are shrinking, and she does have a little elevated protien on her cells (something that determines Her2 + or-). Also, Herceptin has very little side effects, and there is no harm in keeping her on it.
Thursday, June 16, 2005
The new port is in
When I got my first port in, I did not remember a thing. So, I thought it would be the same for this time. I should have known a little differently when the nurse anesthetist and several doctors came in and said I would feel drowsy and very comfortable, but would probably be awake. I told at least 4 different people that they could just knock me out--no problem--I did not want to feel a thing! However, I was awake for most of it. It was not too bad. I did feel a little pain and after telling them nicely (not really) that it hurt, they gave me more drugs. It was actually pretty interesting to hear the operating room banter. I am also amazed at the number of people in the operating room. No wonder it costs so much; I'm paying for a dozen people's hourly wages!
Well, that's the update! Have a great weekend :)
Wednesday, June 15, 2005
Good news...and we really needed some good news!
So, my insurance changed the lab from out of network to IN!! And, since I have met my deductible, they will pay 100% of the testing!! This is wonderful and a huge answer to prayer because after looking at my policy, I did not see an easy way for them to approve this test. In fact, I read an easy way for them to deny coverage.
This test will help my doctors down the road with my treatment; give me knowledge and forsight to help my sisters and daughers; and it helps to either cancel out the idea or discover why I have breast cancer. It is just an extra piece of good information to have, and I am so excited to not have to make the decision about whether or not to pay the $3000 out of pocket!
The test takes three weeks as the lab will spend a lot of time counting tiny bits of DNA three times over. I amazed at scientific breakthroughs!
Speaking of breakthroughs, I was talking to my surgeon in preparation for this port procedure tomorrow and he mentioned I was Her2 negative. This means I might not keep taking Herceptin like I have been. I was a little sad because this drug Herceptin has been in the news so often in the last few months as being a "wonder drug" for Her2 positive cancer patients. I asked Dr. Euhus if there was as good of drug for people that are Her2 negative. He said there was not one as good as Herceptin yet, but within 2 years, they will have 10 drugs available that will help people as precicely and with few side effects (like Herceptin) that will target every breast cancer cell. This is huge, and 2 years is so short a time to wait. More good news! I could hear this stuff all day!
I will let you know how the port exchange goes late tomorrow evening...
Tuesday, June 14, 2005
Report on the Port
Well for the second time, I went into to Dr. Euhus' office for him to remove my port and it was feeling fine (of course!) So, he decided not to remove it today. He felt it and now feels with certainty that it is not infected. Therefore, he is going to remove it Thursday afternoon in surgery and put a new one in right away.
Before, he wanted to remove the port and let the "infection" heal, then put a new one in. Now that there is no infection, he can remove and replace at one time.
I was kind of wondering why it has to be removed at all without an infection, but Dr. Euhus said there is something wrong, maybe a small hole that makes the drugs leak a little, a block in the line, etc... because it swells up, hurts, then feels fine, swells up, hurts...
So, in the long run this is a good thing. I was a little nervous getting my port out just in the doctor's office with a just a local anesthetic. Now, he'll put me under and do it all at the same time. Also, I will not have to have my chemo round 4 in my arm, they will be able to use my new port Monday.
The port procedure will be this Thursday at 3:30. Thanks for your prayers.
Sunday, June 12, 2005
Fun in the Sun
On another note, Jessa's port is infected again. Surgery is tentatively scheduled for Tuesday. I'm having to give Jess shots again, but just once a day. It's just a day surgery so Jess should still be able to do arts and crafts all week at Vacation Bible School.
I got a letter from a pastor and his wife pointing out something I didn't realize in the Meshack story (they even spelled the names correctly). It seems that they were sure that God would save them. What they were unsure about was if the king would change his mind about throwing them in the furnace. Their faith amazes me because in the moment they stepped into the furnace they were able to trust God whole-heartedly.
Wednesday, June 8, 2005
Tuesday, June 7, 2005
Busy as a Bee
About a month before Jessa was diagnosed with cancer, I remember telling a good friend of mine that for me God doesn't speak through other people-- if He wants to tell me something He'll just tell it to me. Well not only does God have a sense of humor, but he also knows I am a lot happier when I am humble (for that matter those around me are a lot happier when I am humble too). For this reason I think He has remained silent in our private conversations with regard to Jessa's future. However, He has told a few other people what her future holds. I remember specifically telling my friend, "No way is God going to tell someone else when he can just tell me." Well, within a few weeks of Jessa's diagnosis, God told a teacher at my school, our pastor's daughter, and a woman in my mother-in-love's and Aunt Sandy's BSF (Bible Study Fellowship) group that it would be hard, but Jess would be OK in a year. For that reason, we have been praying ever since that Jess would be OK in a year. It has already been a hard year, but Jess and I both have hope. There is a story in the Bible where three men are asked by their king to reject their god and worship himself instead. When the three men, Shadrack, Meshack, and Abendego (spelling?) refuse to do that they are thrown into the fiery furnace. Right before they go, they are given one more chance. Their unanimous reply is that God will save them. I believe that God is choosing in this instance to heal Jessica completely.
Saturday, June 4, 2005
Getting From Point A to Point C
Friday, June 3, 2005
New Prayer Calendar
Here's the prayer calendar for June:
1st Pray for God to heal completely 2nd Pray God’s word will comfort and revive them Psalm 119:50 3rd Pray God’s Word will light their paths Psalm 119:105 4th Pray they will draw near to God 5th Pray they will find God’s grace sufficient II Cor 12:9 6th Pray for rest Is 40:28-31 7th Pray they will trust God’s hand Is 49:16 8th Pray they will know the Lord is near Psalm 34:18 9th Pray they will thirst for God and be satisfied Psalm 42:1 10th Pray they will seek the Lord and call on Him Is 55:16 11th Pray they will believe God John 14:1 12th Pray they will abide in Him and bear fruit John 15:7-9 13th Pray for contentment Phil 4:11 14th Pray they will trust God to carry them Is 46:4 15th Pray they will cast all their worries on God II Peter 5:7 16th Pray for healing Jer 32:27 17th Pray they will stand in his His strength with joy Jude 24 18th Pray for rest Mat 11:28 19th Pray they will wait for the Lord Prov 20:22b 20th Pray they will be filled with praise (Jess has chemo today) 40:3 Pray for healing Jer 17:14 22nd Pray for God to go before them Deut 31:8 Pray for family harmony Col 3:13 24th Pray for God’s care Ezek 34:11-12a 25th Pray they will trust the Lord Jer 17:7-8 26th Pray God will work all things for their good Rom 8:28 27th Pray God will remove all fear Is 41:13 Pray they will know God’s care Job 10:12 29th Pray they will fix their eyes on Jesus Heb 12:2 30th Pray for joy and peace Is 55:13